My life has been amazing all these years. I've literally had everything I wanted. I thought it would always be that way. Then, an acronym crystallised in my life. NMO entered my life bringing a change that I never expected. Having many full blown attacks, losing vision, the ability to pee and to walk around has been overwhelming. Recovery has occurred but has been slow. It has left me apprehensive with an ever growing fear of another attack setting in any at moment.
Regardless, I have found ways to cope with my predicaments especially psychologically. I sure hope that I can help others too who face similar problems but have no where to express themselves. This disease is extremely rare. I haven't come across anyone who has heard of it. Searching for it on the internet (which many had stopped me from) made me realise the scant research which has been put into this life changing disease. It also made me realise that there is no one who has put up a post on this. Only in its fourth decade of being known, it is often mistaken for MS especially in many parts of the developing world where the research is even more scant and knowledge on neurology is not in as much demand. This mistake can be life threatening because the drugs are not designed for NMO.
I've kept this anonymous because my parents have concerns. i.e. facing rejection and being stereotyped in my society as 'incapable' or 'inadequate' (I know it is unfortunate but that is how they roll here) although ,despite the illness, I have shown no sign of withdrawal and I have even more will to live and do something for my parents and for myself.
The purpose of this blog is to share my experience, how I have had to fight through this illness and my daily predicaments.
Regardless, I have found ways to cope with my predicaments especially psychologically. I sure hope that I can help others too who face similar problems but have no where to express themselves. This disease is extremely rare. I haven't come across anyone who has heard of it. Searching for it on the internet (which many had stopped me from) made me realise the scant research which has been put into this life changing disease. It also made me realise that there is no one who has put up a post on this. Only in its fourth decade of being known, it is often mistaken for MS especially in many parts of the developing world where the research is even more scant and knowledge on neurology is not in as much demand. This mistake can be life threatening because the drugs are not designed for NMO.
I've kept this anonymous because my parents have concerns. i.e. facing rejection and being stereotyped in my society as 'incapable' or 'inadequate' (I know it is unfortunate but that is how they roll here) although ,despite the illness, I have shown no sign of withdrawal and I have even more will to live and do something for my parents and for myself.
The purpose of this blog is to share my experience, how I have had to fight through this illness and my daily predicaments.